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Thank you all of our 2021 attendees and sponsors!
Our 2021 Event was a huge Success!!!! We could not have done this without you.
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2018 Birdies For Butterflies -Thank You!
Held on September 10th 2018 Video from our 2018 Event Video from our 2016 Event A huge THANK YOU to our two main sponsors from our 2018 event! A shout out to our other sponsors from 2018 who have made this possible! VIEW PHOTOS FROM 2018…..Click here VIEW PHOTOS FROM…
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Birdies for Butterflies Photos from 2018
A huge Thank You to everyone who came out to support the Birdies for Butterflies Golf Tournament on Sept 10th 2018! The Butterfly Fund thanks you. Click Here for photos the 2018 Foursomes
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William turns 8!
Hard to believe this little guy is 8 now. Time flies. I wan’t to post the heart touching words from his mother on his Birthday yesterday! xoxox William!!! Happy Birthday! Anim – “I am grateful to have had another year of life with you! What a privilege that is. I’m grateful for the beautiful person…
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2016 Birdies for Butterflies Tournament Photos
This year was a huge success!!!! We were able to raise over $30,000 for the Butterfly Fund and the cause of EB. Thank you to each and every one of you for making it possible!! Were were told by many that this was the best one yet! Here are few of the photos!!! Enjoy!
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You are invited!!! Butterfly Wings for Butterfly Babies!! – July 19th 2012
JOIN THE CONTEST and SILENT AUCTION!!!! Create A Butterfly for A Butterfly Baby! In honor of Baby William and in an effort to help raise money for EB children and & EB Families in need, we are inviting you to join us for an evening of fun and laughter. We are asking children to create…
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One of my favorite pictures!!!!
Thank you to everyone for all of your sweet letters after Fox 31 Denver aired his story!!! They brought tears to my eyes!!!!
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Here is a link to the segment from Fox 31 Denver news station that aired tonight. What a cool way to raise awareness! Thank you so much Fox and Libby Weaver for doing the story. William’s family thanks you!!!! http://kdvr.com/2012/04/25/little-boy-with-painful-skin-disease-here-for-a-purpose/
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Watch Williams Story Tomorrow Night on Fox 31 Denver!!!!
I’m so excited. Williams story is going to air tomorrow night at 9:00pm. Prime time on Fox 31 local here in Denver. PLEASE TUNE IN AND WATCH if you can!!!! I sure hope people are inspired to know that there are little angles out there with such an appreciation for life! I’m thinking this is…
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William goes Piano Shopping!
Thank You to Chris and Amy Kilroy for the amazing gift!!!! Just in time for his Birthday!!!!! This was recommended by his therapist to help him keep his fingers moving. William is a big fan of music and musical instruments. His Grandpa John is the guitar player you see in many of the pictures. If he is ever crying, the sound…
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Williams Goes Home
I can’t find words to describe how great it was to have Baby Bill here for the week. I’m sad to see his highchair sitting there empty. But I know that he is happy to be home and in the comfort of his familiar surroundings. He was so cute when we dropped him off at the airport. We had…
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Interview with Fox 31 Denver
Today we took him to Children’s Hospital here in Denver. Dr. Anna Bruckner runs the EB clinic and does a fabulous job, from what I’m told. I was referred to her by nurse Jeri who works for DEBRA (see.DEBRA.org). Our purpose for being there was not for treatment but to meet with Fox 31 Denver to do a story…
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Bandage Changes
These were done twice while he was out here. Typically it can take three to four hours. It took us four and a half. The first day he had a really rough time. The second time he was much more calm and very happy at the end when it was all over, as you can see from…
BIRDIES FOR BUTTERFLIES 