Today we took him to Children’s Hospital here in Denver. Dr. Anna Bruckner runs the EB clinic and does a fabulous job, from what I’m told. I was referred to her by nurse Jeri who works for DEBRA (see.DEBRA.org). Our purpose for being there was not for treatment but to meet with Fox 31 Denver to do a story on William. Libby Weaver deserves most of the credit for this one. She set the whole thing up and even sacrificed her time on her birthday to take calls and help coordinate things to make this possible. She did the interview with Dr. Bruckner who talked a lot about EB. She does not treat William so that was more general information about EB, care, and research for the cure etc. Then in the very cute and comfortable waiting room, Libby interviewed Anim. At one point I had to hold back tears because it was so touching. I can’t spill it all here so I will have to keep you updated with news on when it will air. We got a lot of footage of William’s daily life that they will edit into the segment. Not sure how long it will be so I guess well just have to wait and see. Stay tuned!
Thank you Libby Weaver so very much for making it possible!!!! And thanks to Dr. Anna Bruckner for taking the time with us. We really appreciate it! It’s going to be a great story!!!!
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