Category: Epidermolysis Bullosa/Hope for William
-
William turns 8!
Hard to believe this little guy is 8 now. Time flies. I wan’t to post the heart touching words from his mother on his Birthday yesterday! xoxox William!!! Happy Birthday! Anim – “I am grateful to have had another year of life with you! What a privilege that is. I’m grateful for the beautiful person…
-
You are invited!!! Butterfly Wings for Butterfly Babies!! – July 19th 2012
JOIN THE CONTEST and SILENT AUCTION!!!! Create A Butterfly for A Butterfly Baby! In honor of Baby William and in an effort to help raise money for EB children and & EB Families in need, we are inviting you to join us for an evening of fun and laughter. We are asking children to create…
-
One of my favorite pictures!!!!
Thank you to everyone for all of your sweet letters after Fox 31 Denver aired his story!!! They brought tears to my eyes!!!!
-
Watch Williams Story Tomorrow Night on Fox 31 Denver!!!!
I’m so excited. Williams story is going to air tomorrow night at 9:00pm. Prime time on Fox 31 local here in Denver. PLEASE TUNE IN AND WATCH if you can!!!! I sure hope people are inspired to know that there are little angles out there with such an appreciation for life! I’m thinking this is…
-
William goes Piano Shopping!
Thank You to Chris and Amy Kilroy for the amazing gift!!!! Just in time for his Birthday!!!!! This was recommended by his therapist to help him keep his fingers moving. William is a big fan of music and musical instruments. His Grandpa John is the guitar player you see in many of the pictures. If he is ever crying, the sound…
-
Williams Goes Home
I can’t find words to describe how great it was to have Baby Bill here for the week. I’m sad to see his highchair sitting there empty. But I know that he is happy to be home and in the comfort of his familiar surroundings. He was so cute when we dropped him off at the airport. We had…
-
Interview with Fox 31 Denver
Today we took him to Children’s Hospital here in Denver. Dr. Anna Bruckner runs the EB clinic and does a fabulous job, from what I’m told. I was referred to her by nurse Jeri who works for DEBRA (see.DEBRA.org). Our purpose for being there was not for treatment but to meet with Fox 31 Denver to do a story…
-
Bandage Changes
These were done twice while he was out here. Typically it can take three to four hours. It took us four and a half. The first day he had a really rough time. The second time he was much more calm and very happy at the end when it was all over, as you can see from…
-
Little Will Party.
Thanks to everyone who came by and brought William toys and gifts!! Much appreciated!!!
-
William is Coming to Denver!!!!!
I’m so excited. William and his mother Anim (my sister) will be visiting Colorado. They are coming out to pay a vist to the sisters as well as all of the people that have been suporters of them over the last two years. William is doing really well and is a happy little boy. He…
-
Updates on William: Here are the latest pictures. He is doing well. Happy and Healthy. He still has all of the normal skin issues but no complications as of right now so that’s great news!
-
-
Willy Updates!
Sorry I have not been on here in awhile. I have been on Facebook quite a bit and have posted some pictures there. William is growing and is now starting to stand with help. He is nearly 9 ½ months now. His eyes are still blue as can be! I wanted to post some…
-
Pictures from the Butterfly Ball
It was a success! We had a wonderful time. Thank you Laurie Sterner you did a terrific job! The butterfly Ball was a benefit put on last week by Laurie Sterner in Sonoma California. She started helping EB children years back and has done amazing things for the EB community. I met her online and she invited…
-
My Trip to see Willy in San Antonio
Back from my trip to San Antonio!! It was a good trip and I got to spend a lot of time with lil William! He is five and a half months now, so big and such a cutie pie. I spent three days there and most of the time was spent indoors. It is very hot there…
BIRDIES FOR BUTTERFLIES 