Hope for William – My nephew with EB

William Vinson was born on March 16th 2010. He was initially a very healthy little boy. Within a few short hours, William developed signs of a very serious complication with his skin. Shortly there after, he was diagnosed with Epidermolysis Bullosa (EB) a chronic, painful, genetic skin disorder with no know cure.

At this time parents Anim and Ezra and awaiting test result that will determine the severity of the disease, and what the treatment plan will be. They are not sure what the future holds at this time. Currently they are at University Hospital in San Antonio. They have been forced to move from their current home to be near the hospital. Thanks to the Ronald McDonald House for putting them up at this time. For the last year, Anim has been working as a full time volunteer for a charity that brings children’s books into Mexico and other third world countries. Her life has now drastically changed, from being in the position to give to others, to now being in need herself.

Many of you have asked where you can donate to help them out in these difficult times. I have set up this page to give information to anyone who wants to help and wants to stay updated. Thank you all for your sweet thoughts and prayers! They are very much appreciated!

If you would like to donate money to William’s family, the Vinson’s please click on the “Donate button” to the right.

Update:  Test results have just determined that the type of EB William suffers from is Recessive Dystrophic EB. At this time William is still in the NICU, receiving high doses of morphine. Parents Anim and Ezra are waiting to see what the treatment plan will be and are learning how to care for him.