Epidermolysis Bullosa

EB is the saddest disease I know of. It is a genetic disorder that affects about 1 in 50,000 babies worldwide. It’s an extremely painful disorder that causes blistering and deterioration of the skin with the slightest touch. Children are forced to wear bandages most of their life to cover their entire body and suffer from extremely painful bandage changes and infections. My darling nephew William, born on March 16, 2010 was diagnosed with this condition (Epidermolysis Bullosa) and is currently in the NICU at University hospital of San Antonio. I created this page to create awareness and support for my sister and baby William, as well as all others who are suffering from this disease.

You can read my daily updates by clicking on the Epidermolysis Bullosa/Hope for William category.  To read Williams story from the beginning, start at my first post at the bottom of this blog. I have also added some videos of Baby William. If you have any stories or experiences please feel free to share. Thank you for visiting.